Role of the Spina Bifida Association of Northeastern New York in the Community

Abstract

The Spina Bifida Association of Northeastern New York serves a primary role in facilitating education, care, networking, and advocacy efforts for families and patients with spina bifida.  The organization has a long history, with volunteers contributing most of the work done by the organization.  Even in the United States, patients with spina bifida are in need of extensive assistance outside the health care, education and employment systems provided by government programs.